You may recall the rise of the worldwide “Ice Bucket Challenge” last year which I wrote about on my blog here. Of course this challenge was designed to raise awareness of MND (or ALS).
Motor Neurone Disease (MND) Week is celebrated Australia wide during the first week of May. During the week, each of the State MDN Associations come together with the common aim of raising awareness and hoping for a world without MND.
This week is also a time to pay tribute to the MND community, especially those living with MND, and remembering those who are no longer with us.
One important aspect of MND is that it is not age related – many people living with MND struggle to receive the support they need, especially those who do not fit within the aged care system.
MND Australia have launched a campaign encouraging our Government to ensure a system that is fair to all people living with MND – if you would like to show your support for this campaign please visit the MND Australia website.
While I don’t need a special week to think of MND and my Dad, it is nice to see others acknowledging this terrible disease and the impact it has on sufferers and their family and friends.
So while I pay tribute to my Dad this week, I also take this opportunity to send special birthday greetings to heaven for Sunday would have been his 65th birthday! Happy birthday Dad xo